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Everything is temporary, almost like a passing fase, some of laughter Some of pain. What we would do, If we had the chance to explore What we had taken for Granted the very day before, Some would say I'm selfish, To hold a little sadness in my eyes, But they don't feel the sorrow When I can't do, all that helps me feel alive. I can express my emotions, but I can't run wild and free, My mind and soul would handle it but hell upon my hip, ankle and knees, This disorder came about,as a friendship said its last goodbyes, Soooo this is what I got given for all the years I stood by? I finally stand still to question it, life it is in fact? What the fuck is the purpose of it all if you get stabbed in the back? And after the anger fills the air, the regret takes it places, I never wanted to be that girl, Horrid, sad and faded... So I took with a grain of salt, my new found reality, I am not of my pain,the disability doesnt define me. I find away to adjust, also with the absence of my friend,I trust the choices I make, allow my heart to mend. I pick up the piecesI retrain my leg, I find where I left off And I start all over again, You see what happens... When a warrior gets tested; They grow from the ashes Powerful and invested. So I thank all this heartache,As I put it to a rest, I move forward with my life And I'll build a damn good nest.
Nikki Rowe
My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me.Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong.Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride.I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain,Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the " incurable " battle.
Nikki Rowe
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