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Remember this: You are the expert of your body.
Sarah Hackley
By taking the time to focus on our mental and emotional well-being, we can minimize our triggers and reduce the likelihood of a recurrence.
Sarah Hackley
No matter what stage of illness we are in, whether we’ve just been diagnosed or we have lived with chronic migraines for decades, there are adjustments we can make to increase joy in our lives and to live more fully.
Sarah Hackley
Behind every stressful thought is the desire for things to be other than they are.
Toni Bernhard
Even the littlest things were now a challenge, one I didn't understand.
Sarah Todd Hammer
I could feel the bite of the autumn air, warning us all of the harsh winter that was on its way.
Jennifer Starzec
No one knows our bodies or our subjective experiences like we do. This means we can rest secure in our knowledge of ourselves and what we’re going through, even when the medical profession doesn’t understand or believe us. Migraine is a weird and changing disease. It affects all of us differently, and every attack is a little different than the one before. This means that no one can understand your life, symptoms, or illness like you can. This can be incredibly empowering: you are the expert. But, it also carries great responsibility: to live as happily and as fully as possible, you must listen to your body and trust your instincts.
Sarah Hackley
Many empaths are diagnosed with chronic illnesses such as fibromyalgia, CFS, lupus, and various autoimmune diseases, as well as psychological disorders such as agoraphobia, social anxiety, ADHD, depression, sensory processing disorder, among many others.
Aletheia Luna
I'm tired of having to struggle for what seems to come easily to everyone else.
Mercedes Lackey
I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.
Sonya Huber
We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.
Michael Bihovsky
Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit.
Jessica Verdi
In late 1985, the Reagan White House blocked the use of CDC money for education, leaving the US behind other Western nations in telling its citizens how to avoid contracting the virus. Many Americans still thought you could get AIDS from a toilet seat or a glass of water. According to one poll, the majority of Americans supported quarantining AIDS patients.This heightened awareness set off waves of anxiety across the country, which was often express through jokes (Q: What do you call Rock Hudson in a wheelchair? A: Roll-AIDS!) and violence. Between the years 1985 and 1986, anti-gay violence increased by 42 percent in the US. Even in San Francisco, where Greyhound buses still dropped off gay men and women taking refuge from the prejudice of their hometowns, carloads of teenagers would drive through the Castro looking for targets.In December 1985, a group of teenagers, shouting “diseased faggot” and “you’re killing us all,” dragged a man named David Johnson from his car in a San Francisco parking lot. While his lover looked on in horror, the teenagers kicked and beat Johnson with their skateboards, breaking three of his ribs, bruising his kidneys, an gashing his face and neck with deep fingernail scratches.
Alysia Abbott
We can feel isolated and powerless when living with chronic illness, but what if your story begins to bridge the barrier or open a way for someone to connect? What if your story offers a glimmer of hope to someone standing at the edge of desolation? ...What if your story starts the conversation?
Cindee Snider Re
This was the first piece to the whole story—the beginning.
Sarah Todd Hammer
It is not easy to talk about a condition once dismissed as ‘the career women’s disease’. But women will continue to suffer until we realise the cost of ignoring it
Hilary Mantel
You spend a lot of time thinking about how awful the prison is rather than envisioning your future.
Piper Kernan
It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing sneakers too. You are in a suit, I am comfortable. So when she explained to me that this was the first event really of its kind, it floored me. So I called my daughter who is in her 30s now and I said “do you know what endometriosis is?” She said, “what? Have to pack the pack the busters.”I said “no man, you have never heard of it?” No she said. I do not know what it is, and it occurred to me that my 30-year-old daughter who I told about endometriosis and it didn’t stick. If she didn’t know, and she is one of the hippest people I know, and her daughter doesn’t know, she has 19-year-old and she is a 13-year-old. The boy, we don’t care much about if he knows about it so much. There is other stuff for him to learn. Like how to roll a condom, things like that.You know, and it occurred to me that if they didn’t know that there were hundreds of thousands girls out there that don’t know. It is not because their mothers don’t want to tell them, because it’s not religion, it’s pure ignorance. We don’t know, we don’t have the information, we have it now, and so now is why this very first gathering is happening. Now is why we’re all sitting here looking really fabulous as you are...[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
Whoopi Goldberg
We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a duty tonight. You only have to tell one other person what you heard. Just tell them what you heard, or ask them have you ever heard of this? If the answer is no, share what you learn tonight.That’s all. You don’t have to do anything else. You just have to tell somebody else. You have to take whatever stigma people think that is there. You have to take it. It’s not male or female. It has nothing to do with that. It has to do with, here’s a disease you don’t know about and you need to know about it. It’s that simple. It’s not rocket science.[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
Whoopi Goldberg
I wanted to relay a first hand experience to an audience possibly struggling to understand just what living with an autoimmune condition means,” Connery says. “It's a difficult journey and very much misunderstood by our friends and family – I hope this book can help to change that.
Richard Connery
My handbag turned into a diaper bag for the chronically ill.
Tracey Berkowitz
That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.
Jessica Verdi
Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.
Amy B. Scher
All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free
Sharon Dempsey
Before I knew it, I was once again being whisked down the hallways at the new hospital into an even bigger room, one that, unbeknownst to me, would be my home for what would feel like a long, long time.
Jennifer Starzec
What if...the doctors couldn't find anything wrong? What if I was over-exaggerating the pain, weakness, and weird sensations?
Jennifer Starzec
If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain.
Jenni Johanna Toivonen
I am disabled but I'm not my disability. Disability is just a little piece of me but it is not my whole personality
Jenni Johanna Toivonen
Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS -
Nikki Rowe
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