Chronic Illness Quotes

Remember this: You are the expert of your body.

By taking the time to focus on our mental and emotional well-being, we can minimize our triggers and reduce the likelihood of a recurrence.

No matter what stage of illness we are in, whether we’ve just been diagnosed or we have lived with chronic migraines for decades, there are adjustments we can make to increase joy in our lives and to live more fully.

Behind every stressful thought is the desire for things to be other than they are.

Even the littlest things were now a challenge, one I didn't understand.

Sarah Todd Hammer

I could feel the bite of the autumn air, warning us all of the harsh winter that was on its way.

Jennifer Starzec

No one knows our bodies or our subjective experiences like we do. This means we can rest secure in our knowledge of ourselves and what we’re going through, even when the medical profession doesn’t understand or believe us. Migraine is a weird and changing disease. It affects all of us differently, and every attack is a little different than the one before. This means that no one can understand your life, symptoms, or illness like you can. This can be incredibly empowering: you are the expert. But, it also carries great responsibility: to live as happily and as fully as possible, you must listen to your body and trust your instincts.

Many empaths are diagnosed with chronic illnesses such as fibromyalgia, CFS, lupus, and various autoimmune diseases, as well as psychological disorders such as agoraphobia, social anxiety, ADHD, depression, sensory processing disorder, among many others.

I'm tired of having to struggle for what seems to come easily to everyone else.

Mercedes Lackey

I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.

We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.

Michael Bihovsky

Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit.

In late 1985, the Reagan White House blocked the use of CDC money for education, leaving the US behind other Western nations in telling its citizens how to avoid contracting the virus. Many Americans still thought you could get AIDS from a toilet seat or a glass of water. According to one poll, the majority of Americans supported quarantining AIDS patients.This heightened awareness set off waves of anxiety across the country, which was often express through jokes (Q: What do you call Rock Hudson in a wheelchair? A: Roll-AIDS!) and violence. Between the years 1985 and 1986, anti-gay violence increased by 42 percent in the US. Even in San Francisco, where Greyhound buses still dropped off gay men and women taking refuge from the prejudice of their hometowns, carloads of teenagers would drive through the Castro looking for targets.In December 1985, a group of teenagers, shouting “diseased faggot” and “you’re killing us all,” dragged a man named David Johnson from his car in a San Francisco parking lot. While his lover looked on in horror, the teenagers kicked and beat Johnson with their skateboards, breaking three of his ribs, bruising his kidneys, an gashing his face and neck with deep fingernail scratches.

We can feel isolated and powerless when living with chronic illness, but what if your story begins to bridge the barrier or open a way for someone to connect? What if your story offers a glimmer of hope to someone standing at the edge of desolation? ...What if your story starts the conversation?

Cindee Snider Re

This was the first piece to the whole story—the beginning.

Sarah Todd Hammer

It is not easy to talk about a condition once dismissed as ‘the career women’s disease’. But women will continue to suffer until we realise the cost of ignoring it

You spend a lot of time thinking about how awful the prison is rather than envisioning your future.

It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing sneakers too. You are in a suit, I am comfortable. So when she explained to me that this was the first event really of its kind, it floored me. So I called my daughter who is in her 30s now and I said “do you know what endometriosis is?” She said, “what? Have to pack the pack the busters.”I said “no man, you have never heard of it?” No she said. I do not know what it is, and it occurred to me that my 30-year-old daughter who I told about endometriosis and it didn’t stick. If she didn’t know, and she is one of the hippest people I know, and her daughter doesn’t know, she has 19-year-old and she is a 13-year-old. The boy, we don’t care much about if he knows about it so much. There is other stuff for him to learn. Like how to roll a condom, things like that.You know, and it occurred to me that if they didn’t know that there were hundreds of thousands girls out there that don’t know. It is not because their mothers don’t want to tell them, because it’s not religion, it’s pure ignorance. We don’t know, we don’t have the information, we have it now, and so now is why this very first gathering is happening. Now is why we’re all sitting here looking really fabulous as you are...[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]

Whoopi Goldberg

We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a duty tonight. You only have to tell one other person what you heard. Just tell them what you heard, or ask them have you ever heard of this? If the answer is no, share what you learn tonight.That’s all. You don’t have to do anything else. You just have to tell somebody else. You have to take whatever stigma people think that is there. You have to take it. It’s not male or female. It has nothing to do with that. It has to do with, here’s a disease you don’t know about and you need to know about it. It’s that simple. It’s not rocket science.[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]

Whoopi Goldberg

I wanted to relay a first hand experience to an audience possibly struggling to understand just what living with an autoimmune condition means,” Connery says. “It's a difficult journey and very much misunderstood by our friends and family – I hope this book can help to change that.

Richard Connery

My handbag turned into a diaper bag for the chronically ill.

Tracey Berkowitz

That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.

Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.

All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free

Before I knew it, I was once again being whisked down the hallways at the new hospital into an even bigger room, one that, unbeknownst to me, would be my home for what would feel like a long, long time.

Jennifer Starzec

What if...the doctors couldn't find anything wrong? What if I was over-exaggerating the pain, weakness, and weird sensations?

Jennifer Starzec

If I only could explain How much I miss that precious moment when I was free from the shackles of chronic pain.

Jenni Johanna Toivonen

I am disabled but I'm not my disability. Disability is just a little piece of me but it is not my whole personality

Jenni Johanna Toivonen

Ache my bones, flame my muscles, tingle my nerves, but you will never taint my beautiful mind & I will overcome this condition with the belief that I already have. - CRPS AWARENESS -

Astray from a deep sleep chronic as I write by phonics, like insomnia I will always live the onyx night for revealing, and, upon it, still I'll steal the bright light of day right away just to keep building at speeds hypersonic.

It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]

I certainly don’t buy into the idea that positive attitudes can somehow mysteriously directly influence physical health outcomes.

My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me.Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong.Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride.I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain,Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the " incurable " battle.

I thought having a chronic illness would make my life detour in ways I didn't want to accept, but I've learnt that have a chronic illness made the only detours that are worth the growth.

The disaster, as Dad and others saw it, was the emerging AIDS crisis and the cultural attacks instigated by conservative against gay men and women in the early 1980s. It was found in the cruel indifference of President Ronald Reagan, who wouldn’t publicly address the epidemic until the end of his second term, after twenty thousand Americans had died, and the hostile rhetoric of conservatives close to Reagan like Jerry Falwell, founder of the Moral Majority, and Pat Buchanan, Reagan’s future speechwriter. In 1983, Buchanan wrote of AIDS, “The poor homosexuals–they have declared war upon nature, and now nature is extracting an awful retribution.

Of course, it’s now obvious why he was so angry that day. People don’t move into hospice to live but to die. And that half an egg sandwich I ended up making him–that sandwich was the last meal he ate in our Haight-Ashbury apartment, our one true home.

As I sat up I turned my head to the side, but immediately straightened it again when I felt a sharp pain shoot through my neck.

Jennifer Starzec

Chronic illness is hard. Pain is hard. Isolation is hard. The financial cost is hard. Grieving is hard and necessary and sometimes takes far longer than we every imagined.

Cindee Snider Re

Recently God asked me the same question in a new way, "And if I don't allow you to heal, if I never remove the pain, will you still trust Me?

Cindee Snider Re

Appearing nude on film was not easy when I was twenty-six in Body Heat; it was even harder when I was forty-six in The Graduate, on the stage, which is more up close and personal than film. After my middle-age nude scene, though, I unexpectedly got letters from women saying, "I have not undressed in front of my husband in ten years and I'm going to tonight." Or, "I have not looked in the mirror at my body and you gave me permission."These affirmations from other women were especially touching to me because when I began The Graduate I'd just come through a period when I felt a great loss of confidence, when my rheumatoid arthritis hit me hard and I literally couldn't walk or do any of the things that I was so used to doing. It used to be that if I said to my body, "Leap across the room now," it would leap instantly. I don't know how I did it, but I did it. I hadn't realized how much my confidence was based on my physicality. On my ability to make my body do whatever I wanted it to do.I was so consumed, not just by thinking about what I could and couldn't do, but also by handling the pain, the continual, chronic pain. I didn't realize how pain colored my whole world and how depressive it was. Before I was finally able to control my RA with proper medications, I truly had thought that my attractiveness and my ability to be attractive to men was gone, was lost. So for me to come back and do The Graduate was an affirmation to myself. I had my body back. I was back.

Kathleen Turner

Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all the ways you’re hurting. My heart is a prison of Have you tried?s Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me? Have you tried shutting up? Yes, I have tried. Yes, I am still trying, and yes, I am still sick. Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem won’t solve the problem. This is not how miracles are born. This is not how sickness works.

Emm Roy

I create beautiful art, so I can look back on the life my body fell short of in such a way that it brings me peace.

That is what chronic illness is . . . a disconnect between what our souls can do and what our bodies can do.

Barbara Lieberman

I guess it's human nature to question yourself, to question why all the pain has had to happen? sometimes there isn't any answers it just is what it is and how we make ourselves feel and see through that, is what will determine how we move forward.

She has fought many wars, most internal. The ones that you battle alone, for this, she is remarkable. She is a survivor.

The secret of making lasting change is to acknowledge and accept that real change takes time and patience. We didn't get chronically ill overnight. We didn't gain weight in one week or even one month. Good chance, it may take us longer than twenty-one days to overcome whatever we're facing. Whether it's something physical, emotional, spiritual, or a combination, we may need to be realistic in our goals for meaningful change to happen. The first step is getting started!

The thought of being able to [move my arms] made me want to give up my legs [instead] since I was accustomed to using them. But, I figured that after a few hours of sitting in a wheelchair...I would switch back...in a flash.

Sarah Todd Hammer

The weekend was a much-needed breath of fresh air; Monday always seemed to not only take that breath right back, but add a few extra pounds to my shoulders as well.

Jennifer Starzec

Dancing with a spinal cord injury is a challenge like no other, but I aspired to prove to myself that I could still be phenomenal dancer even with an SCI

Sarah Todd Hammer

People who don't see you every day have a hard time understanding how on some days--good days--you can run three miles, but can barely walk across the parking lot on other days,' [my mom] said quietly.

Jennifer Starzec

I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.

Jennifer Starzec

The video was still playing, although I didn't know why. It seemed as if the able-bodied dancers were mocking me.

Sarah Todd Hammer

I had learned quickly that life doesn't always go the way I want it to, and that's okay. I still plod on.

Sarah Todd Hammer

She was always fighting a battle but her smile would never tell you so.

The thing is, there is no certainty in this life - in one second your entire world could shift. I'm not saying it will, but I am living proof that It can. We never prepare for tragedy and that's a good thing but my god what's it's taught me is how little we appreciate what we have or some cases once had.

Somewhere inside that hurting body, there is something better, something stronger, something real.

r.m drake

Happiness will be fleeting if you constantly search for it in places that can be taken away. It's an inside job.

The question is not how to get cured, but how to live.